Multiple sclerosis is a strange, no, bizarre, disease. To review: for many (most) people, MS is a relapsing-remitting disease. Attacks (relapses), which can have a variety of symptoms, hang around for days, weeks or months, and then go away (remission). Remission may mean that the person is free of all symptoms of the attack, or [...]
Jan 012012
Wendy Booker is back at sea level after her second attempt to summit Everest last month. After being diagnosed with MS in 1998, in her early 40s, Wendy says she was scared – scared of winding up in a wheelchair, scared of the unknown, in uncharted territory. “I figured I’d better start working on my [...]
Feb 172010
A new resource from the Multiple Sclerosis Trust (UK): Exercises for people with MS. When Exercises for people with MS was launched in 2004 it was the first publication designed to build on the evidence that exercise was good for people with MS. It offered people with MS and health professionals simple guidance about appropriate [...]
Nov 162009
In the absence of a dramatic relapse, it seems to take me weeks to recognize a downturn. And the thing that should really tip me off is my sudden inability to exercise. But no. I spend weeks berating myself for not being able to do four or five workouts a week “like everyone else”. There [...]
Oct 142009
Here’s a good, basic, article from United Spinal: Exercising With Multiple Sclerosis: It?s Not Rocket Science One mistake that many people make when they start exercising regularly??whether it?s lifting weights, circuit training, or performing cardio??is focusing on what everyone else in the room is doing. Bad idea. Naturally, when you notice others at the gym [...]
Sep 032009
Yesterday I felt like I’d been hit by a truck. Today I feel better – more like I’ve been hit by a Fiat.
Other people with chronic illnesses report that they are frequently accosted by people who press weird cures on them. This doesn’t seem to happen to me very often (maybe I scare them away), but it did the other day. A kind of hippie-ish guy fell in with me as I was crossing the street. He [...]
Apr 152009
From today’s paper: On Labor Day that year Clark’s sister was able to talk her through an attack, which was brought on by the stress of planning to go away for the weekend. After that, she was able to stop several other attacks by relaxing during stressful times. “Talk her through an attack”? Maybe it’s [...]
Mar 232009
Liz writes: At some point it just feels sucky to be around people having fun if they expect you to also be all fun-having when you can’t. I have to go off by myself a little at that point to deal with myself and whatever pain I’m in. I used to be a fun person. [...]
Dec 172008
Thanks to Ziggi at Wheelchair Diffusion for the link to the NARCOMS presentation on MS and physical activity. Some excerpts: Less than two out of three responders (57%) recalled their treating physician ever having recommended exercise to them. The main reasons given for an exercise recommendation were general health benefits, weight control, and fatigue management [...]
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