Comments for brokenclay.org/journal http://journal.brokenclay.org the art of intermittent disability Thu, 02 Feb 2012 15:07:21 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Unexpectedly Upright by fridawrites http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-94752 fridawrites Thu, 02 Feb 2012 15:07:21 +0000 http://journal.brokenclay.org/?p=2792#comment-94752 This is good news, Katja! I have not been blogging still because of my wretched shoulder pain but miss doing it and talking with you and others more. I hope your remission is as long lasting as possible. Sometimes it's easy to forget how much more difficult every movement is in the wheelchair--my family laughed uproariously at me recently when I was on foot and took a weird footpath into the laundry room--I automatically followed the same path I have to do in the wheelchair, walking past the doorway and turning around in the hallway. Very strange. It was just so automatic. Cool with the new puppy--will try to read back for more info. I have a service dog now--labradoodle. This is good news, Katja! I have not been blogging still because of my wretched shoulder pain but miss doing it and talking with you and others more. I hope your remission is as long lasting as possible.

Sometimes it’s easy to forget how much more difficult every movement is in the wheelchair–my family laughed uproariously at me recently when I was on foot and took a weird footpath into the laundry room–I automatically followed the same path I have to do in the wheelchair, walking past the doorway and turning around in the hallway. Very strange. It was just so automatic.

Cool with the new puppy–will try to read back for more info. I have a service dog now–labradoodle.

]]> Comment on Unexpectedly Upright by Katja http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-94070 Katja Sat, 21 Jan 2012 22:05:07 +0000 http://journal.brokenclay.org/?p=2792#comment-94070 Becky, Stephen, Erik - thank you for your comments! Erik, good to hear from you again. Becky, Stephen, Erik – thank you for your comments! Erik, good to hear from you again.
Latest from Katja: Unexpectedly Upright

]]> Comment on Unexpectedly Upright by Erik http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-94018 Erik Fri, 20 Jan 2012 22:48:00 +0000 http://journal.brokenclay.org/?p=2792#comment-94018 It has been a long time and I stop by and there is very good news. I am very happy for you! MS is a life of the inexplicable from the the good to the bad. I am glad that you at a point of the inexplicable good. I look forward to seeing some pictures of you on a bike! It has been a long time and I stop by and there is very good news. I am very happy for you! MS is a life of the inexplicable from the the good to the bad. I am glad that you at a point of the inexplicable good. I look forward to seeing some pictures of you on a bike!

]]> Comment on Unexpectedly Upright by zenhead http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-93537 zenhead Thu, 12 Jan 2012 14:06:23 +0000 http://journal.brokenclay.org/?p=2792#comment-93537 wow - very inspiring for one who has been struggling to stay out of full-time wheelchair status! VERY happy for you to have the luxury of worrying about how your ass looks. you are right, MS is a weird disease. wow – very inspiring for one who has been struggling to stay out of full-time wheelchair status! VERY happy for you to have the luxury of worrying about how your ass looks. you are right, MS is a weird disease.
Latest from zenhead: CANCER – if you smoke, please read this

]]> Comment on Unexpectedly Upright by Sylvia http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-93443 Sylvia Tue, 10 Jan 2012 22:00:13 +0000 http://journal.brokenclay.org/?p=2792#comment-93443 I'm just so excited for you, Katja. I can understand the mixed emotions. I'm convinced the workouts have something to do with it, all that bike riding in the country. I'm green with envy. I’m just so excited for you, Katja. I can understand the mixed emotions. I’m convinced the workouts have something to do with it, all that bike riding in the country. I’m green with envy.

]]> Comment on Unexpectedly Upright by Katja http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-93345 Katja Mon, 09 Jan 2012 01:54:33 +0000 http://journal.brokenclay.org/?p=2792#comment-93345 Liz, long time no read! Great to see your comments. "Eerie" is really apt. Yes, people are happy, and it's hard to satisfy them that I'm as happy as they are, because this whole thing is eerie and unpredictable. I'm trying to resist countering people's happiness with a laundry list of the things that are still wrong with me... Liz, long time no read! Great to see your comments.

“Eerie” is really apt. Yes, people are happy, and it’s hard to satisfy them that I’m as happy as they are, because this whole thing is eerie and unpredictable. I’m trying to resist countering people’s happiness with a laundry list of the things that are still wrong with me…
Latest from Katja: Unexpectedly Upright

]]> Comment on Unexpectedly Upright by Liz http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-93344 Liz Mon, 09 Jan 2012 01:37:17 +0000 http://journal.brokenclay.org/?p=2792#comment-93344 Do people sometimes act like they're really happy (with you) that you're "better" now? I never know quite what to say to that. There is a bit of an attitude that other people are vastly relieved, and then they're disappointed when they realize I am not actually "better"... I forgot to say that I have a small Dahon folding bike, which weights less than 25 pounds. It's amazingly cool and you can rig up crutch holders on them. Anyway, with the folding bike I can put it in my car and drive somewhere, then bike around. Do people sometimes act like they’re really happy (with you) that you’re “better” now? I never know quite what to say to that. There is a bit of an attitude that other people are vastly relieved, and then they’re disappointed when they realize I am not actually “better”…

I forgot to say that I have a small Dahon folding bike, which weights less than 25 pounds. It’s amazingly cool and you can rig up crutch holders on them. Anyway, with the folding bike I can put it in my car and drive somewhere, then bike around.
Latest from Liz: A frivolous post about tea

]]> Comment on Unexpectedly Upright by Liz http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-93343 Liz Mon, 09 Jan 2012 01:34:42 +0000 http://journal.brokenclay.org/?p=2792#comment-93343 I really know what you mean! I don't have MS but I do go back and forth (without being able to predict it very well) between walking, crutches, and wheelchair use. It is very strange to venture out of the house for even short trips without the wheelchair and to walk from my car into work barely using a cane. What an eerie feeling to walk out of the house and across the street to get something from my car, without any mobility aids at all! For some times I could even fold up my canes and put them into my backpack. It was nice, but I could see not super reliable. I liked feeling tall(er), the convenience of it, and being "unmarked" by people I met. I did not like trying to stand in lines for things, or standing up to talk with people! Well, I messed up both ankles and I'm flat on my back again now. I enjoy the walking moments and the optimistic moments but try not to have all my expectations of what I can do reset. (But I start to expect it anyway and then have a bit of an emotional rollercoaster to ride when I can't walk again.) I really know what you mean! I don’t have MS but I do go back and forth (without being able to predict it very well) between walking, crutches, and wheelchair use. It is very strange to venture out of the house for even short trips without the wheelchair and to walk from my car into work barely using a cane. What an eerie feeling to walk out of the house and across the street to get something from my car, without any mobility aids at all! For some times I could even fold up my canes and put them into my backpack. It was nice, but I could see not super reliable. I liked feeling tall(er), the convenience of it, and being “unmarked” by people I met. I did not like trying to stand in lines for things, or standing up to talk with people!

Well, I messed up both ankles and I’m flat on my back again now. I enjoy the walking moments and the optimistic moments but try not to have all my expectations of what I can do reset. (But I start to expect it anyway and then have a bit of an emotional rollercoaster to ride when I can’t walk again.)
Latest from Liz: A frivolous post about tea

]]> Comment on Unexpectedly Upright by becky http://journal.brokenclay.org/wp_archives/2012/01/01/unexpectedly-upright/comment-page-1/#comment-93285 becky Sat, 07 Jan 2012 14:14:29 +0000 http://journal.brokenclay.org/?p=2792#comment-93285 Oh that is encouraging news it sounds. Thanks for sharing your journey and wishing you well in the new year and hoping so much you get to get on that bike and find some fun new jeans! Oh that is encouraging news it sounds. Thanks for sharing your journey and wishing you well in the new year and hoping so much you get to get on that bike and find some fun new jeans!
Latest from becky: Friday Favorites

]]> Comment on About Me by Travis Laurence Naught http://journal.brokenclay.org/about-me/comment-page-1/#comment-93148 Travis Laurence Naught Wed, 04 Jan 2012 19:03:51 +0000 http://journal.brokenclay.org/about-me/#comment-93148 I am a 28 year-old quadriplegic wheelchair user who has a book of poetry/prose coming out in March 2012 titled The Virgin Journals released by A S D publishing out of New Jersey. The book will be split into three sections; Life, Love, World. It is going to be roughly 170 pages long and is a good mixture of memoir poetry & person centered world views. My hope is that people will be able to learn about themselves by reading my words. I would love to make myself available as a possible interview for your site. Thanks for any interest! I am a 28 year-old quadriplegic wheelchair user who has a book of poetry/prose coming out in March 2012 titled The Virgin Journals released by A S D publishing out of New Jersey. The book will be split into three sections; Life, Love, World. It is going to be roughly 170 pages long and is a good mixture of memoir poetry & person centered world views. My hope is that people will be able to learn about themselves by reading my words. I would love to make myself available as a possible interview for your site. Thanks for any interest!

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